Sunday, February 19, 2023

"O" boy...he is a young man!

This kid right here...   He is 14 years old and doing all of the amazing things.  In the past year he has put on 10 pounds and has grown almost a half a foot.  He still has the feeding tube for emergencies but will be removing that in July 2023.  His GI doctor is super proud!  His favorite foods right now are cheeseburgers, pizza, and macaroni and cheese. 

Visits to the pulmonologist are still necessary as Cyler still has decreased lung capacity. However, during his last visit we observed Cyler wasn't really. blowing effectively during the pulmonary function test, potentially skewing the results.


He is doing amazing at his little private school.  There is no focus on grade level but rather meeting kids needs where they are and building from there.  The goal for Cyler is take the GED when he is ready.  He does really well in reading but he struggles with math.  He has dyscalculia, a disorder affecting the ability to grasp even the most basic math concepts.  

Right now he is enjoying life to the fullest.   He is dancing and excited for the upcoming recital.  Tae Kwon Do is on hold right now so he can focus on dance.   When he goes back he will pick up where he left off...red belt.