So far, so good!

It has been a whirlwind of a year.   Our sweet little boy is not so little anymore.  He is 11 and full of sass!  He is really growing and putting on weight.  He is still getting tube fed at night to assist with his caloric intake.  He is in a school that he loves but is rapidly outgrowing because he is learning so much and they only teach up to a certain level.  AHHH!  We are in the process of researching our options.  Here is what we have been up to this year.

Recital: Sonya (his dance teacher) did an amazing job in putting this show together and Cyler loved every minute of it.  This kid is a star and he knows it!  He is not afraid to tell anyone and likes to perform anywhere.

In addition to dance Cyler has started Taekwondo this year and it has been really good for him.   His dancing skills have helped him so much.  He has already earned his yellow belt!

Heart follow up:  All is good.  His PVC's are minimal and he can do everything...no limitations.  He was super excited to find a "Mickey" in his heart! He still has to get checked every couple of years to make sure everything is still ok.

And...this Halloween he wanted to be "mac and cheese".  It is his favorite food.  We had fun making the costume and even won a couple of contests.  After a couple of days he got a little tired of wearing it.  He said he "retired it" and decided to be King Arthur for book character day at school and our church fall fest!

Daytona Here We come....

Several years ago my mom made a deal with Cyler.  She told him that she would send him to Talledaga when he is able to eat a whole cheese burger.  Well he did it...FINALLY! He ate an entire cheeseburger from Wendy's!   He decided that he would like to go to Daytona though because he would be able to get "fan passes" there.  So, we are going to the Daytona 500 in February!  This is all after feeding tube placement.  He is still tube fed at night but his appetite is still pretty good during the day.  He has managed to gain 10 pounds.  YAY!

He hasn't eaten a cheeseburger since then.  LOL.  We have been super busy.  He attending school closer to home and LOVING it.  He has an AMAZING teacher.  He has grown so much this year physically, emotionally, and academically.  He still loves building arcades out of legos and drawing birds eye diagrams of all of the arcades he has been to.   He loves his dance classes and in fact is taking 5 of them this year.  Phew, I have no idea how he can remember all of those steps.  His recital last spring was amazing and he had 3 dances to remember.  He is my little star!  Here are some pictures from the 2018 recital.  He made me get "pictures for his portfolio".

He is so creative too.  He wanted to be the Monopoly Man for Halloween and he actually won 2 contests.  Hasbro even used his picture on Instagram.  Super cool, Huh. 

On top of all of this he is still working on melting hearts world wide.  He was recently invited for a private tour date at the Lakeland Police Department.  He spent some time with the boys in blue and their furry partners.  He brought treats for the fur guys.  They loved their time with him so much they made a video of their time spent together and featured it on there face book page. 

More next time....  Here is a cute pic from our recent Disney Cruise.  <3 .