Saturday, January 12, 2013

We are off and running

Cyler didn't finish out that last week at the feeding clinic.  He never did work it out with that therapist.   I did have to interrupt one of the sessions.  The therapist was sitting behind him and pulling his head back while shoving the food in his face.   I was absolutely mortified and he was screaming so I had to end it.  The rest of the week he was with the other therapist and did better.  However, the following week he started acting strange.  I told them that there was a difference in the food that they were sending up.  He ended doubled over in pain on several occasions.  One time he even ended up in the emergency room.

During one of his episodes of pain he ended up biting the therapist.  She was blaming his behavior.  Turns out the food that he was being "forced" to eat was made with egg.  He is highly allergic to egg and that's what caused this severe reaction.  I did not take him back there (other than the final meeting) since I found that out.  Furthermore, as far as Cyler biting the therapist--I think that if I was strapped to a chair, in agony, all while listening to the hokey pokey might have caused a similar reaction.

Now on the the good stuff.  Cyler is eating like a champ.  We are constantly adding new foods.  Right now everything has to be pureed but that is ok.  He doesn't get any overnight feeds and is completely off of the Peptamin Jr.  We are absolutely thrilled.  Some of his favorite foods are yogurt, mac and cheese, and spag o's.   He really loves broccoli and Velveeta.

Since Cyler is not on overnight feeds anymore we have also lost our nursing.  Terry took a job at Knight's Trucking.  He is out on his first run right now.  This is all going to take some getting used to. We are used to being together all of the time and now it is going to be weeks before we are together again.  Thank GOD for cell phones.