Eating

Something that we take for granted on a daily basis is the ability to chew and swallow food.  When someone doesn't get the opportunity to experience this early on in their development they can struggle a great deal with this very issue.  This is what happened to Cyler.  Cyler has been fed by a tube his entire life.  It began in the NICU.  He was fed via tube because he was intubated and sedated for quite sometime. He came home with a feeding tube and that is how he gets his nutrition.  We have tried several times since he has been home to introduce different tastes and textures.  We have been a little more persistant now that the trach is out.  Well about two weeks ago Cyler decided that he would eat for us.  He worked himself up to almost 2 jars worth of baby food per day. All of a sudden a few days ago he just stopped...he has no interest anymore.  We were warned that this might happen but it doesn't make it any easier to deal with.  All we can do at this point is keep offering and keep the faith!