Thursday, March 24, 2011

The Places We Go!!!!

Cyler has continued to do really well without his trach.  He has had one cold and his first bout of rotarvirus...yuck!   One thing that is a major change is that his nose is constantly running now.   He is exposed to everything and I guess he is developing allergies.  It doesn't help that the pollen count has been so high lately that it doesn't even register.   Those normally without allergies are finding that they too are susceptible to the yellow goop.  Anyway, the stoma looks really good even though it is still open.  The tape was really irritating to Cyler's already sensitive skin, so I fashioned a neck wrap out of trach ties.  Surprisingly it works really well.  It holds the gauze in place and if I need to change the gauze I just need to loosen one side of the tie and viola!    Just like before.






I must admit that it has been really nice being able to just get up and go without having to worry if the suction machine is fully charged or if we have enough catheters.  We have been so many places.  We went to Disney...
...Cyler had tea with Minnie Mouse!

and rode Dumbo with Daddy!


Disney was a lot of fun!  We have also gone to Sea World,  we got season passes so that we can go there whenever we have a doctors appointment in Orlando!  Last Sunday my mom took us all to the zoo.  Cyler really loved looking at the animals. He even got to feed a giraffe!



He really liked the aquarium at the zoo.   He enjoyed making faces at the fish...the tanks were huge and so were many of the creatures inside!
It was a really great day!   My mom got to spend some much needed time with Cyler and he loved it. 


We have been so busy having soo much fun.  Trying to get all this done before the real heat of summer sets in.  Here in Florida it gets quite hot and I don't think that would be too good for anyone let alone Cyler.  So we are now looking for some indoor activities!